By her 5th birthday, Kiara could barely stand on her own and she was skin and bones. While the pediatrician reassured me that she was still within a normal weight range, I knew something was very wrong. In January I had made an appointment with her neurologist, but his first available spot wasn’t until Mary. It now it was the end of March and we were getting desperate, but we waited.  Pro Tip: Go to the ER! Don’t wait for a specialist’s appointment.